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Emiria
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« on: February 19, 2010, 03:36:12 AM »

Our 1 yr old little girl has excema all over her torso and she hasnt slept a whole night through since it developed at about 2-3 months. Constantly screaming periodically through the night. tonight is the worst for a long time wont resettle and I've now been up with her since 2am.

Tried everything:( (nappie, more cream, juice, cuddles, reassurance, scratchsleeves etc etc)

At wits end......going to try docs again.........feel completely powerless
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Frankiecheska
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« Reply #1 on: February 19, 2010, 11:54:54 AM »

Hi ya,

Frankie my 8 month old girl has full body eczema. I changed her cream recently and apply it every nappy change, this has eased her itching a bit, and her skin looks normal. I keep her bedroom cooler than the rest of house as i found she gets hot quick. I researched this product call derma silk...she may look like an orphan but it has certainly helped....

how hav you been getting on at the docs??

Stay strong

xx
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Andrea
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« Reply #2 on: February 19, 2010, 07:41:57 PM »

I so feel for you.  You both must be shattered, have you been offered a referral at any point?

I know when we have an itchy night, I get Josh's cream out and he helps me to rub it on..... often jumping on the pot to get to it fast.

When we were at our worst we were offered antihistamines to help with the itchyness at night time.

Hope your both ok. x

 
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Emiria
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« Reply #3 on: February 21, 2010, 10:15:21 PM »

Not been offered much by way of referrals or help - last time I was at the docs I was basically dismissed and given a printed sheaf of papers full of stuff that we already knew...... I now refuse to see that doctor.

Have tried Aveeno, eumocream, E45 Itch relief, Simple Derma Itch relief, doublebase and epaderm....nothing really helps it. as soon as I go to change her nappy she starts itching straight away and its now at a point where nappy time is a battle ground with her twisting constantly to try to itch and us trying to stop her itching/change nappy/stop her falling off changing surface all at the same time.

I have tried changing washing products for her, we were using Fairy tried ecover which made it worse and surcare which has also been a nightmare. Apart from the ecoballs I cant think what else to try.

Living on a budget i cant afford to keep trying different things which either don't help or make her worse. I would love to buy her organic clothing but funds being what they are we just cant do it:( All I can hope is that she will eventually grow out of it.

My other worry is that her development is suffering because of the irritation she has constantly. she is now nearly 15 months old and not walking. Nor saying much apart from Dada and Mama.

Truly do feel like just curling into a ball and hibernating til its all over  Sad But thats just the lack of sleep talking.

Anyway after having a crappy weeks holiday back to work tomorrow...I go there to have a rest  Cheesy
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Frankiecheska
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« Reply #4 on: February 22, 2010, 08:10:48 AM »

Ahhh i had tears in my eyes when reading your last post Emiria,  I have felt, like a lot of eczema baby mum exactly the same!! Frankie DID NOT get on with Fairy non bio or ecover....so what i did as we are not well off, i went to sainsburys and bought some of their TU body suits.....I boiled them in a steel pan and then rinsed them. Yes i was exhausted but with in 3 days i saw a difference with Frankies skin. I do not use creams containing SLS...google it....Andrea opened my eyes to that.

With the derma silk i use underneath any clothing garment i put on Frankie to try and prevent a Flare up.... I now use SURECARE on her clothes and ours...everything including washing up liquid...Its not a bad price. I had to rinse and wash Frankies clothes that had been washed in NON Bio Fairy about 100 times...the fragrance was so potent.

Frankie scratches her belly like a dog with fleas every time i put her on her back....Its been quite bad lately because we had a flare up which i swear is due to tomatoes. So i entertain with toys or put her scratch mits on or even sit in the teddy bear position and use each of my legs to hold down each of her arms..... Frankies only 8 months tho.

There is a new product called Evolve Plus 100% natural, my doctor knew nothing about it so i will have to purse this avenue.

I feared for Frankies development.....i even marched down the doctors with a premeditated speech...

Has your LO had Jabs??

At one point i got so wound up it was projecting onto Frankie and i had to remind myself...i'm doing the best i can. This site was a real help.

I wash my hands in organic soap from here and the black african soap...awesome stuff. I also use the bees wax cream....highly recommend it. i hardly bath Frankie!! but i'm going to invest in some bath stuff...

have you tried probiotic, like the yogurt? or evening primrose? have you gone detergent free??

Sorry so many questions....really want to help.

xx

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Andrea
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« Reply #5 on: February 22, 2010, 11:28:10 AM »

Emiria I really understand how you’re feeling.

Fairy & Ecover were both problematic for us too.  Like Frankie's Mum says - getting rid of the stuff ones it's in there is near on impossible!   I've washed 2nd hand clothing over 10 times in soap and my little boy still can't ware the items.

We use old fashioned soap flakes for the family washing, it's recommended for baby laundry too.  
Best thing is its cheep... you pay more ordering it online due to the cost of posting it, but you can pick up 'Grannys' Soap flakes in a big Tesco’s for ÂŁ1.99 a box.... so far cheaper than even shops own detergents.  
We use the Soap, a little spoon of soda Crystals (also from Tesco’s for under £1 a bag, it lasts for a couple of months and we wash every day)
White vinegar to rinse - just put little bit into the fabric softener draw.  - Everything has an extra rinse cycle.

The only problem with swapping over and trying different washing solutions is that a build up of many different products can be more irritating than just 1.    -  I didn't manage to stop Josh reacting to his old clothing.  
At first the organic vests I bought were more of an experiment to see if they helped, I was amazed how soon his skin settled to be honest.  Like Frankie’s Mum mentioned, any new vest will probably be better than an item you have that's been washed a few times.

Japanese Study  - that study demonstrates how the detergent from the clothing is transferred onto the skin, and it's this that can cause the itching in these little ones.  The more an item is washed, the more residue is left in the fabric.

Dose anyone in the house use bubble bath?  Shampoos in the bath?  Or harsh bath cleaners’? - This can be another source of skin irritation.  Even if you’re not using it in your little girl’s bath the traces of these products all remain in the tub when the water drains away.  
When you fill the bath these products are now in the bath water again so in wet contact with your little ones skin.
One Mum who went detergent free is amazed her little one can now sit in the bath splash an enjoy it and not just scratch his skin non stop.

Swapping away from detergents is more a lot of hard work than money and when you’re tired it's really hard going.  If you want to know more about going detergent free I'm happy to help in anyway I can and point you to info and things we found helpful.  
Now were detergent free, it's much cheeper and no diffrent to using detergent based cleaning products, aside from the health benafits to Josh (and also me).

If your worried about your little ones development have a chat with your Health visitor, they should also be able to give advice about skin care and eczema, it's possible your heath centre has an eczema clinic or nurse that might be able to help you too.

Have you tried any dietary changes?   I know that not all professionals agree on this, but people - us included have seen real improvements cutting items out of the diet.
Suspect foods can be removed carefully for 6 weeks to see if there’s an improvement.  If there is then you can re-challenge (test) whether the food is a problem by feeding it again and seeing if the symptoms return.  Again this is something your health visitor may be able to help you with, if not Foodsmatter Site has a helpful and informative forum covering food sensitivities and allergies.

I hope things are a little bit easier for you this week; it's such a frustrating and heartbreaking condition for everyone to live with.  

Sorry, what a long post!




I've herd the Evolve cream mentioned by another Mum too, I must have a better look at it!

« Last Edit: February 22, 2010, 11:37:02 AM by Andrea » Logged
Andrea
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« Reply #6 on: February 22, 2010, 11:50:52 AM »

I forgot to say.  The 1000's wash box of EcoBalls comes with a 30 day money back guarantee from the manufacturers. 

I've not had one returned to me yet, but they can be returned to the place you buy them for a full refund, minus the postage costs I think.
There still a large outlay. 
There is also a 100 wash box 'trial' box available from some places which is cheaper.
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